Who we are

    Overview

    We're the national peak body that represents children and young people (aged 0-25) with disability. CYDA is a not-for-profit community-based organisation that was officially incorporated as a company limited by guarantee in November 2009.

    The organisation was initially established in 2002 as the Australian Association for Families of Children with Disability. CYDA receives its core funding under the Department of Social Services (DSS) national secretariat program.

    We also receive project funding from:

    • DSS to provide information, referral and systemic advocacy regarding the experiences of children with disability in relation to the work of the Royal Commission into Institutional Responses to Child Sexual Abuse
    • DSS to support the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability
    • the National Disability Insurance Scheme (NDIS) Information, Linkages and Capacity Building (ILC) Program
    • Equity Trustees.

    CYDA provides a link between the direct experiences of children and young people with disability and their families and the Federal Government and other key stakeholders. This link is essential for the creation of a true appreciation of the experiences of and challenges for children and young people with disability and their families.

    History

    CYDA was incorporated as a company limited by guarantee to advocate at the national level for children and young people aged 0 to 25 years in 2009. CYDA was formerly known as the Australian Association for Families of Children with Disability.

    Annual Report

    2021 Annual Report PDF

    2020 Annual Report PDF

    2019 Annual Report PDF

    2019 Annual Report DOC

    Constitution

    CYDA's Constitution sets out the rules that govern the organisation’s internal management and operations.

    Download a PDF version of CYDA's Constitution PDF

    Board of Directors  

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    Matthew Hill – Director / Chair

    Matthew (he/him) is a senior executive with more than 10 years of experience in governance and board roles involving both the not-for-profit and private sectors. Matthew has a strong interest in providing value and support to communities and associations like CYDA. Over Matthew's career he has developed skills in leadership, building relationships, seizing control of critical problems and delivering on customer commitments.

    Matthew is a father of two children and has family experience of disability. Matthew is extremely committed to progressing the rights of children and young people with disability. 

     

    Timothy Lachlan – Director

    Timothy (he/him) is a young person and is the first Australian to land a wheelchair backflip, he is also autistic and lives with hypermobility spectrum disorder (HSD). Timothy is a Third-year Occupational Therapy (OT) student who is passionate about Wheelchair Moto-Cross, fabrication and advocating for access and inclusion. His passion for helping others is what lead him to become a member of the Co-Design Committee for the National Youth Disability Summit.

     

    Lara Maia-Pike – Director

    Lara is an equity practitioner and mother of two boys. She has worked in Higher Education for over fourteen years and is passionate about education and social justice.

    She is a PhD candidate in Inclusive Education with research focusing on transition planning for students on the autism spectrum in senior high school. She is an Associate Fellow for the Higher Education Academy and a HDR member of the Centre for Inclusive Education.  

    Julie Mavlian – Director

    Julie (she/her) is a mother of four children including a young person with disability.

    Julie is currently a Learning and Support Teacher at a NSW public school. She has a Masters in Special Education and has worked with students in a variety of educational settings from preschool through to adult for more than 30 years.

    Julie is a passionate advocate who has worked proactively for the rights and needs of children and young people with disability. 

     

    Grace Mills – Director / Deputy Chair

    Grace (she/her) is a young person with disability who has been involved with the disability sector in Western Australia since 2013. She has experience in a range of community organisations including Youth Disability Advocacy Network (YDAN), Diverse Leadership WA and VisAbility.

    Grace is currently also involved with the Ministerial Advisory Council of Disability, Telethon Kids Institute Youth Advisory Group and previously was a member of the City of Perth Access and Inclusion Advisory Group.

    Grace believes that the inclusion of young people with disability in the community is crucial for increasing the level of participation and recognition of abilities, particularly in areas such as education and employment and social inclusion through community events.  

    Jocelyn Neumueller – Director / Secretary

    Jocelyn (she/her) is a student with lived experience of disability. She is currently studying Law at Flinders University while pursuing her sporting ambitions of achieving a podium position at the Paralympics.

    Outside of her study, Jocelyn is involved with a number of organisations advocating for and supporting young people living with disability. For the past four years Jocelyn has been selected as the student representative for the South Australian Ministerial Advisory Committee for Children and Students with Disability.   

    Pam Williams - Director

    Pam (she/her) is a senior executive with experience in government and consulting. She has had leadership roles in operational service delivery, emergency management, strategic policy and planning, and research, audit and evaluation. Pam has worked on the policy and provision of state government community and disability services. She has also undertaken Board Director roles in a community housing association, tenancy support group, and local community organisations.

    Pam has family experience of disability and is keen to support the work of CYDA in promoting the rights of children and young people with a disability.

     

    Staff

    Mary Sayers – Chief Executive Officer

    BA, Grad Dip HR, MCom, GAICD

    Mary (she/her) joined Children and Young People with Disability Australia (CYDA) as Chief Executive Officer in July 2019. Over her career she has worked across policy and research, advocacy and service delivery to progress positive outcomes for children and young people, and the broader determinants of social wellbeing. She has family experience of disability as a parent, and is a passionate advocate for the rights of children and young people.

    Her previous roles have been Deputy Chief Executive Officer of the Victorian Council of Social Service (VCOSS) for almost five years; Manager, Children, Young People and Families at the City of Whittlesea; and Associate Director of translational research, policy and service development at the Centre for Community Child Health at the Murdoch Children's Research Institute.

    She was on the Board of Management of QEC Early Parenting Centre for eight years, including two years as chair of the board. She is a current board member of the Australian Council of Social Service (ACOSS).

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    Madeleine Clarke – Project Coordinator - Disability Standards for  Education

    Maddy (she/her) joined CYDA in July 2021. She previously worked as an educator and facilitator, and is passionate about using education to empower young people and transform lives. 

    Before joining CYDA, Maddy worked with primary and secondary students to build their skills in topics that ranged from space science to respectful relationships. She also designed youth-focused programs with grassroots organisations, and created online education experiences for health professionals on chronic disease management.  

    As someone with lived experience of disability, Maddy values genuine commitment to inclusion, sharing knowledge, and centering youth voices. 

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    Miranda Cross – Policy Officer 

    Miranda (she/her) joined CYDA in September 2020. She has a background in social work and is passionate about ensuring all in society can participate in and enjoy community life on an equal basis. 

    Prior to joining CYDA, Miranda worked across research, policy and project work for the Brotherhood of St Laurence’s Research and Policy Centre. She worked in the Centre’s youth and disability teams, followed by a stint in the organisation’s NDIS services division. 

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    Joanne Ellingworth – Business Manager

    Joanne (she/her) joined the team at CYDA in October 2013. Joanne has more than 30 years of experience working as an executive assistant and administrator in small business.

    Joanne is extremely committed to progressing the rights of children and young people with disability.

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    Liz Hudson - Policy and Research Manager

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    Amy Marks - Youth Connection and Development Officer

    Amy Marks (she/her) is a human located in Melbourne that has living experience of physical disability. 

    While Amy also does work in the media, she’s been fortunate enough to volunteer and work in various positions within the disability and youth sectors including at YLab and Student Life and Leadership at Victoria University. More recently, Amy worked at the Youth Disability Advocacy Service (YDAS) where she assisted in developing the ‘Emerging Young Leaders’ Program. 

    After that she ran off to Disney World for nine months and completed the ‘Disney College Program’ in Florida!

    When Amy is not working in the Youth Action Team you can find her watching animated or documentary movies, telling cheesy jokes and perfecting her GIF game.

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    Jason McCurry – Youth Leadership and Engagement Officer

    Jason (he/him) is passionate about diversity and inclusion across all industries and aims to ensure people from diverse backgrounds are provided an opportunity to have a voice and are involved in decision-making relating to key issues in their lives. He has a background in sports management, events management and diversity and inclusion. 

    Jason has a lived experience of disability, living with Tourette’s Syndrome and mental illness since a young age. He was on the Board of People with Disability Australia (PWDA) in 2018 and is an advocate in the disability sector. Lived experience is embedded into all the work Jason does, and he is very excited to engage and work with young people with disability across Australia to ensure everyone has equal access to participation in community, education and employment. Jason is a big believer in ability over disability – by focusing on our strengths and disability pride. 

    Jason understands the importance of an intersectional approach to inclusion and having grown up in a small country town in Victoria, he strongly values community connection and understands the added barriers that people from rural/remote backgrounds can encounter.

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    Brendon Pinto - Youth Trainee

    Brendon (he/him) joined CYDA as a Youth Trainee in January 2021. Brendon is a no-nonsense individual who mostly keeps to himself, but at the same time, is more than willing to work with other people in a team.

    Brendon has first-hand experience of living with disability, having been diagnosed with Autism and ADHD from a young age. His goal as a Youth Trainee is to help other children and young people with disability, especially those with intellectual disabilities such as Autism and ADHD.

    Brendon’s personal hobbies at home include surfing the web, drawing things, and playing games on his laptop.

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    Ewen Rawet - Policy Engagement Officer

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    Tasha Ritchie – Youth Programs Manager

    Tasha (she/her) is passionate about supporting and creating opportunities for young people to be leaders of social change, and is very excited to work with CYDA and young people across the country to make this kind of magic happen!

    Tasha trained as a lawyer and was previously the Managing Director of Titjimbat Gija - Teachabout Inc. a youth-led community development not-for-profit that facilitates community programs in remote communities in the Northern Territory. Tasha is a member of the Australian Lawyers for Human Rights Indigenous and Women and Girls subcommittees, and a part of Liberty Victoria's Rights Advocacy Project on the Indigenous Justice Team. She has worked with the Foundation for Young Australians (FYA), Ylab and the Victorian Aboriginal Child Care Agency - VACCA, and is currently the Deputy Chair of the Board of the Youth Affairs Council Victoria (YACVic ).

    With a background in youth engagement and the arts, Tasha loves all things co-design and enjoys finding new ways to inspire and motivate young people into action about the issues that matter to them. When she’s not at work, you’ll find her on the side of a mountain, swimming in salt water or out bush up in the NT.
     
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    Sue Tape – Project Coordinator - Inclusive Education

    Sue (she/her) joined CYDA in April 2020 to help develop communication and information resources to engage young people with disability and families of children with disability in the Disability Royal Commission, the National Young People with Disability Summit and the National Redress Scheme, among other communications activities.

    Sue’s career experience is in auditing, design and implementation of learning and development at a local, national and Asia Pacific level. Sue is now using her career experience in building an inclusive local community around her family. Sue is excited about the opportunities to share her family's story, connect with other families and be a force for change.

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    Robert Pask – Policy Adviser

    Robert (he/him) has extensive experience and knowledge of Australian politics and the disability sector. He has played a key role in promoting a policy focus on job retention for people with chronic illness and disability.

    Through his voluntary involvement with boards including the Chronic Illness Alliance and the Consumer Health Forum, Robert has brought into focus the growing cost of healthcare for people with chronic illness using pharmaceuticals and other health programs.

    In 2013 Robert received the Excellence in Advocacy and Rights Promotion Award at the National Disability Awards and the Huntington's Victoria Advocacy Award.

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    Sarah Priest – Communications and Media Adviser 

    Sarah (she/her) is a dedicated communications specialist with a Bachelor of Business Marketing and post graduate qualifications in Public Relations. She has worked in Australia and overseas. Throughout her career she has always been drawn to working for organisations with a social conscience. She joined CYDA in 2021 with a hope to help make a positive difference for young people with a disability, their families, and carers who are often disproportionally affected by many barriers impacting their quality of life and opportunity to reach their full potential.

    Sarah is also keen to shine a light on the tenacity, victories and talents of the CYDA community. Her previous roles have been working across a diverse range of sectors and industries including youth, family, disability, health, education and government.  

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    Terry Wesselink - Community Impact Manager

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    Kelly Wilson – Project Coordinator - National Redress Scheme

    Kelly (she/her) joined CYDA in December 2020 as Project Coordinator – National Redress Scheme. Kelly has previously worked in project management and policy roles in mental health and health care services. She enjoys collaborating with others to create social change and a fairer and more inclusive society. 

    Most recently she worked as a Policy Advisor at Beyond Blue, leading advocacy activities to reduce discrimination by the insurance industry against people with a mental health condition. She is passionate about ensuring that projects and policies are designed and developed in partnership with the community, and creating meaningful ways for people with lived experience to participate and share their own experiences. 

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