Even before entering the scheme, families of children and young with disability encounter challenges with the National Disability Insurance Scheme (NDIS) eligibility criteria and the difficulty in obtaining medical diagnostic reports and assessments to prove the child’s disability. This provides significant costs and stress to families, and inequitable access for children living in families experiencing poverty or hardship.

Many find it hard to access to the scheme without support or advocacy services. Families are also concerned their child only receives support for what is considered the “primary disability” rather than support for the full spectrum of needs.

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